Dec 28

It is time now to order THE wheelchair.  It will be a decision that no-one ever thinks about making.  How about a car, or a house….,but a wheelchair?  It takes a lot of consideration and expertise to decide on the size, material, shape, and -in case of a woman:) - the colour of a chair.  Someone along the way must make a pretty profit on a $5,000 chair…..  The insurance picks up a chunk of it in our case - BUT if you are looking for a sales position it must give you an idea of field:)   It is 4 wheels and a frame, nothing robotic.  I guess Wall-Mart didn’t get the right approach to it yet.

At this time the source of most problems actually comes from her room mate.  It is more and more clear to me now that Jitka suffers from sleep deprivation.  Between the regular 4hr interval of care (8PM, 12 and 4 AM) she has to wake to the sound breaking, barking snore of her neighbour.  Fortunately, it will make her appreciate my gentle, nightly “serenade”. chraa…..brrrrr

For two days we have Teresa and Jess visiting from Greenville, NC.  If you follow this blog you sure have had a chance to read about them.  They both have been a tremendous help to me personally, especially looking after Rowan and Encsi when I needed it. The children are the driving force of this process.  I feel guilty of the times when I thought they slow me down. I know it is actually I, and this horrible situation, that has slowing effect on them. I am looking very hard to find a caring, loving nanny for them.  They deserve more attention.  I think I am just a little bit worn out.  Fortunately, Jitka just absolutely adores having them around regardless the chaos we three carry along to her…..   It is wonderful to see.   

I mention one more thing before calling it a night: Love and THANKS to my family. Thank you for your help.  Love to Jitka’s brother and his family. and to her parents, many thanks.  There are neighbours who turn into friends. There are friends who turn into family.  And there is family which becomes an ever closer and stronger entity. It is too bad Jitka has to pay the sacrifice for it, and I am so limited in sharing the burden.  With all my love, thank you ALL!  Jani