Dec 21

Here we are ganging up on Jitka for Christmas.  Her parents are here as well and she certainly has lots of attention.  Now we make our dinner time like a family should: We bring food to an area with tables and spend some nice time together.  Jitka has OK appetite - eats more than mouse, but less than a kitten….

She had her neuropsych testing done and it seems like everything is all right in the memory department. I am a little disappointed about it though: For a while I was hoping that some things I have done in the past she would be grateful enough not to recall:) 

Fortunately her fluid waisting problem has improved greatly as well.  She does not need a constant catheter any more.  This makes moving around more plesent.  As a great disappiontment, this morning the catheter had to be reinstalled because the of a likely new infection.

Jitka and I started to practice moving into a vehicle.  I need to learn how to help her transferring on a slide board.  If we get signed off on it we will have a chance to get a pass to leave the hospital for a few ours.  That would be just absolutely great!  I am planning to use the time to have a nice meal together at our friends house here in Atlanta, and to open presents by their Christmas tree.   

We had such a nice tine yesterday evening.  Jitka, Papa, Nana, a friend from Seattle Monja, Todd, Melissa, Charlie, Rowan, Encsi, and I were all together.  Had some great meal from Wholefoods - (thanks Kurt:)) - and took lots of pictures.

I was back at home in NC for a few days.  It is still absolutely amazing how much support we get from our friends there.  Someone is looking after our house, Niki at Kidstown is looking after the children if it is needed.  Neighbors gave us food/presents/offered help with work on the house.  We built a ramp with Jitka colleague Dr. Ray to the back of the house.  At this time we are waiting to get get our application approved to purchase a house with full wheelchair accessibility.  It is difficult because we can’t sell our current house before the purchase of the new one.  Too many details to mention here…  The ramp is needed to our current home for Jitka to go home to the house she knows is home.  She won’t be able to live there, but I think it is very important to take her home there first, even if it is for an hour.

I hope I get to update this site one more time before Christmas, but if you don’t get to read it for a while, Merry Christmas to you from us!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!