Jitka’s status Blog

A website to keep family and friends updated on Jitka’s health.

Update #10

November 6th, 2007 by janos

Last night Jitka managed to pull her feeding tube out.  At this time inserting a peg-tube directly to her stomach is not possible.  Her white blood cells are on the increase, and the count cannot be relied on to establish the success of the operation.  She needs to have a stable or decreasing count.  So for the time being it is a bit of hunger that keeps her mind REALLY occupied.  It is to an extent that I was afraid to tell her I was going to the cafeteria….  Her air intake was the lowest at the same setting I have seen.  However, it improved from the lower 200s to the lower 300mL/breath - at the same setting of 5PEEP and 45%O.  This change occurred between 2PM and 9PM.  That is promising.  I am looking forward ot finding out the white cell count and the respiratory numbers tomorrow morning.  Her red cell count continues to climb.   Today I established contact with the rehabilitation specialist.  She will start working with Jitka very soon.  It would be great if she would not need the ventilator anymore. In that case she could try to swallow food and the peg-tube would not necessary be needed. Please give me some room here for error.  I am not the medical pro.  I would let Kal update this site, but I am just tired of him making mistakes with his English. 

I know this site is dedicated to Jitka, but sometimes I will write some news about the kids as well.  They are very lovely and not giving me hard time at all ————–,that was my nose growing there.  They ARE lovely.  Rowan feels all better. Encsi never got sick at all.  I am very grateful to a local drop-in child care called Kidztown for taking them in.  Thank you Niki!  I also have help from friends who stay with them while I see Jitka in the evening.  Thanks to you too!  I am planning to spent tomorrow afternoon with Rowan.  I think he would appreciate some one-on-one attention.

Jitka was awake and aware of her surroundings for at least 4 hours this morning.  She got really tired of me being there….  She is frustrated by all the tubes and noises.  At least that is my impression.  We try to communicate with different methods, without great success.  That must be nerve wrecking for her.  I know it is for me.  We will have good friends and family visiting from Saturday.  I am looking forward to that.  I am sure she will be very upbeat about seeing her friends and family too.  I feel like writing more, but I won’t torture you with my English anymore.  I have ONE sleeping pill left.  Put that to use in a minute.  Good night!

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2 Responses

  1. Sal & Marijo Graziano Says:

    Just wanted to drop a note to wish all of you well. We appreciate being kept updated via the blog. Our daily prayers are for Jitka and the entire family.

    Please let her know that we wish we could do more, but the great distance that separates us from you prevents that.

    Jitka, keep fighting … you will make things improve by your strong will and inner strength.

    With our love,

    Sal & Marijo Graziano

  2. Wendy Rushlow Says:

    Dear Jani
    We are here at Henry Ford Hospital, Nephrology where Kal spent 2 years in our fellowship program. He often spoke of his sister and we commented many times how much he loves her and the rest of his family. Kal is a wonderful human being and I just absolutely know that Jitka is exactly like him. Our thoughts and prayers are with you and your family and want you to know that if there is anything we can do for you or Kal, just let us know. Wish we were closer to you where we could help with the children. Just let Jitka know that Kal’s “other family” here at Henry Ford is following her progress and pray for her daily.
    Take care and God Bless

    Thank you!

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